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Wednesday, August 24, 2011

Karl's Impossible Life - Definitely Not for Sissies by Robert R. Schwarz


By Robert R. Schwarz



"Your weakness is perfected in your journey" ... Fr. Joji Thanugundla,
associate pastor St. James Parish , Arlington Heights, Illinois



"Do not compare yourself with others, who seem to skip along their  life-paths with ease. Their journeys have been different from yours, and I have gifted them with abundant energy. I have gifted you with fragility, providing opportunities for your spirit to blossom in My Presence. Accept this gift as a sacred treasure; delicate, yet glowing with brilliant Light. Rather than struggling to disguise or deny your weakness, allow Me to bless you richly through it." ...    Sarah Young (listening to Jesus speak to her heart), from her journal, Jesus Calling

     
Karl stood motionless for perhaps a half-hour watching the breeze-blown pond ripples gently come to shore. His face, deeply-lined prematurely for his 55 years, was serene, and his eyes seemed to be welcoming glints of sunlight reflecting from the ripples. At his side was a small black and white dog, its attention riveted on the three ducks bobbing for food among a patch of lilies. Except for the frayed, straw hat that harmonized with his black hair, Karl’s resale shop  clothes were a disturbing mix of colors  and  ill-fitted sizes, more suited for a man much larger than five-foot-six Karl. Ironically, He K  five years ago Karl was successfully selling men's clothing in an upscale department store in Milwaukee. 
Looking at Karl's face  that day, one couldn't escape the thought that standing there and gazing upon those ripples, that  he was being healed of something beyond the grasp of any doctor.   He was not homeless, though constantly  close to it.
Karl at last broke silence by turning to me and saying  softly, "  Glad you're here, Bob."
I hadn't seen Karl for seven years,  since we had  worked together on a cable television  talk show I moderated for our church.  He had suddenly dropped out of sight without any forwarding addresses.
We got in my car and drove to his apartment, stopping on the way at the house of his friend Jill to return her dog,  which Karl often walked through parks and forest preserves. I told Karl I wanted to know all that had occurred in his life.  
            "Are you and Jill—well,  you know…?" I asked.
            "Just friends. I sleep over sometimes when she gets lonely. Actually,  I'm much more serious about  Derrick, her dog,"  he added, laughing.  "We’re  great buddies. He lies on my  chest when I watch TV."  
            Karl and Jill had met in Milwaukee  while attending county-sponsored   rehab meetings for alcoholics, addicts,   an assortment of felons, and  those, like Karl, without  category.   
             Their relationship,  as I was later to observe after a few visits to Jill's house,  provided a much-needed shelter for the couple. She, despite her impulsive  caustic remarks to Karl and her periods of  depression,  nevertheless  had given Karl a cuddly dog to sooth him at critical moments and a spare bedroom when Karl needed a respite from his crazy-quilted life; and Karl ,  despite all of his socially unacceptable behavior,  had offered her some companionship. The relationship, though, was often strained to its  limit.            
Upon entering  his small two- room apartment,  I was jolted. Never had I seen  any habitat—human or animal—so disorganized. It was as if a wacky artist,  looking for subjects to paint,  had spent hours creating the most  disparate piles possible of common household items.  Clothing, soiled linen, open food boxes,  hardware, magazines, ashtrays (at least four)—all lay before us like an intimidating moat daring to be crossed.  The tragic oddity of the scene was that nothing had been purposely placed anywhere.
            "Let me get a light,"  Karl said.
            "Good idea," I replied, now doubting the prudence of my decision to renew our friendship.  I excused myself and walked to the bathroom. The tub was half-filled with pots, pans, and an assortment of jars and Tupperware.  It reminded me of a  decadent  German abstract expressionist paintings so popular in the 1920's and 30's.
            But when I sat down on a chair  Karl promptly cleared for me, I saw there was nothing  decadent about Karl's take on life.  The walls were covered  with  religious writings and icons:  here and there a cross, depictions  of Christ, Biblical verses  and other spiritual maxims.  Karl had obviously tacked them up the very moment he thought  of it and then reached for a  hammer and  tape or  the nearest pencil and paper. Though disturbing to the senses, I saw nothing  irreverent or neurotic about it. Its totality said Karl was obviously a man of faith and hope.
            Yet, I  couldn't take my eyes from the walls. I knew I should say something--but what?
            "I know it's a little messy,"  Karl said.  "I've been here almost a year.  The rent is really cheap."
            "You really  love the Lord,  don't you, Karl?" 
            "My parents made sure I went to church every Sunday, and wherever I am I hunt down a church."
            I  became aware of  Karl's peculiar speech pattern : It had a staccato beat as it  bumped along, and  he repeated phrases again and  again, as if the thought which prompted the phrase faded so fast that  Karl doubted if he had spoken the words. He seemed forced to go into trivial details for long moments in order to approach the point he wanted to make. And  I don't think his attention span would allow even a flash of diversion.  Often it was impossible to interrupt his talking unless I shouted, "Please stop!"  It  tested anyone's   patience, if not his or her  charity.
            I said goodbye to Karl an hour later: "We'll  have to have coffee sometime."  (I didn't mean it.) At his  apartment building complex came  another shock.  My car was gone. I had not seen the  obscured, weather-beaten  tow-away warning sign for non-residents.  I returned  to Karl's apartment. Seeing how upset I was at  soon having to pay $125 to get my car back, Karl actually began to cry. We went to the super's office to plead my case, and Karl shed more tears in front of the super. No  man in my life had ever shown to me such a tender heart.  I got the car back within an hour. No fine.  I told Karl—and meant it—that I would soon be  calling him for coffee .
***
            Two weeks later, we were having lunch at McDonald's. Half-way through his hamburger, Karl suddenly frowned, excused himself, and went to the men's room. Fifteen minutes later  he returned. "I'm sorry," he said.  " I got this diverticulitis thing and I had  to  vomit." He explained that he forgot to take his doctor's advice to drink carbonated water with his meal to prevent choking on food . Truth was he hadn't the money for  the  annual esophagus dilation  that  enabled him to swallow food.      
I now thought it necessary to take some inventory of my  friend's  life situation.  He tolerated  my questions with modesty and some embarrassment  Little  did I sense that we were drifting into a relationship in which Karl would soon be openly  referring to me as "Bob, my  mentor." 
            At the end of our very long talk during which Karl went into detail about his maladies, I sat speechless, finding it astonishing,  unbelievable that any human being could be that afflicted  and still gaze meditatively at pond ripples and, as he was now,  to relate his life so matter-of-factly.  
*      He's been a recovering alcoholic since age l7, when, he says, he  became deeply depressed by the death of his 18-year-old, much loved  brother  killed in an auto accident.  (His father was an alcoholic, often unemployable as his son was now.)
*      He (and his shut-in sister) has major depression, as did his mother,  who likely  passed it on to Karl. 
*      A recent  bicycle accident left him with (manageable)  multiple compression fractures  along his  spine  and a  broken collar bone that will not completely heal. (once losing his driver's license because of an alcohol-related accident, Karl has not driven a car in decades and relies on his bicycle to get around.)
*    Now and then the osteoporosis  in several  bones flares up, as does a hiatal hernia  (a bulging of the stomach through the muscle that separates the chest from the diaphragm).
*      Most embarrassing  to Karl, he says, is his Tourette syndrome, an inherited  nervous system disorder that causes his face to unexpectedly twitch violently.
*      Then there is  some asthma and a variety  allergies, some of which keep him home-bound  for several days in all seasons.   
*       Major anxiety, also inherited, causes Karl to grind  his front teeth—they were now down to the gum line—while sleeping . The grinding  noise at night is so disturbing to his sister and her children  that she regretfully disallows Karl from ever sleeping over.
*  Perhaps the most debilitating of his afflictions, one that  has also marginalized Karl in society, is a crippling combination of  attention deficit disorder (ADD) and a  severe  bipolar disorder.  






             Karl and I began seeing each other weekly, usually for coffee and occasionally for a drive to a nature center, where we would hike while Karl endlessly vented his passion for just about everything growing on the  ground or visible  in the sky. We also visited my brother, a disabled veteran then living in a nursing home. Karl's outgoing, cheerful nature was steadfast with my brother as it was with strangers; I never doubted   the  genuineness of his persona and never saw it overshadowed by a bipolar symptom or any  of his many medications. When one day we were again at that favorite  pond of his and  he was being lulled into serenity by the sun-dappled ripples, I suddenly  understood the severity of his ADD and  manic-depressive disorder and why he kept returning to this pond;  it was the glint of sunlight upon the rhythmic patterns of ripples !  They afforded Karl a precious moment to stay focused  on  something beautiful,  to elude all those senseless distractions that  hourly altered his mind and vision, all that kept him from becoming a friend to himself.  
***
              A year   passed. Karl was frequently telephoning me, taking long moments to repeat phrases and to ramble on with trivia. The rambling and repetitions  were the building block he needed to reach that which Karl really wanted  to say. Sometimes my fortitude waned and I would at last  loudly interrupt and make a summary conclusion for him. He didn't mind my brashness;  the fact that someone—other than the young  counselor he met at his  weekly county-sponsored  recovery group—was willing to actively listen  to him was golden for Karl.  My friend  saw much of his world in  jigsaw pieces  which he was constantly  having to make fit.  Karl's  anguish  was not altogether dissimilar from that experienced by the  schizophrenic who sees reality with  frightening distortions.
             On a few occasions I would exhort Karl to make sure that despite all his health issues, his simple, job-free  life and frequent visits to Jill's house to watch television and walk her dog to the forest preserve  was not a deceiving  comfort zone in which he was a virtual prisoner and  from which he had no intention of leaving. Hesitatingly I once asked him,  "Karl, have you done everything to get healed from all you afflictions and are you sure you really want to be healthy again?"  He assured me that nothing more could be done for him other than taking his meds,  seeing his counselor, and going to church and Bible class.   
             Karl  had been waiting two months for dentures; years of grinding his front teeth had also injured  his lower jaw. For the required surgery and multiple dentist visits,   Karl had had to negotiate a discounted time payment plan with the dentist. He missed a payment or two and each time  had to plead his case to the dentist.  (Karl and his sister had mutually  agreed that she was to  receive  her brother's monthly Medicare  check and deposit it, when she thought  necessary,  in Karl's bank account. "This was a precaution against a manic spending urge of mine," Karl once joked. He often used humor to be ruthlessly honest about himself.)
             A week after Karl got his dentures,  he took them out of his mouth and proudly  waved them at me. That same day he  and I were visiting my brother  when  my friend again  showed a  tender heart. He greeted several nursing home  residents, including the demented, with  typical, outgoing  cheerfulness; upon my brother, Karl poured out humor and a prayer to conclude our visit. On the drive home, we stopped at a fast-food place,  had lunch, and were down the road 12 miles when Karl shouted, "My teeth ! I lost them!"
             I pulled over to calm  Karl, now frantically searching his clothes and car seat. Believing Karl had left the dentures on his tray when he trashed it (his gums were still too tender to chew solid food), I telephoned the eatery and pleaded with the manager to promptly  search all  trash buckets there. I waited while the manager searched,  and when he called back and said the dentures were not to be  found,  Karl openly wept.
          "Let's go home, Karl ," I said . "You'll get another pair from Medicare."
          "I can't !" Karl cried . "They will only pay for one pair!" 
           Karl became inconsolable.  
                 We had been back on the road for ten minutes when Karl began patting  his shirt pockets  for the third time. "I got 'em , Bob !" A moment to celebrate.
***
             If there was any  warning or  foreshadowing of  the rock bottom to which Karl was about to descend, neither one of us saw it .
              As customary, when I didn't hear from Karl in more than five days, I telephoned. He answered,  voice subdued. "I had an accident on my bike again, Bob. I was rushing to make a doctor's appointment, put on the brakes  They failed at the intersection. Dumb driver paid no attention to my bike. My brakes failed."
            Karl had flown over the handle bars, breaking two ribs and  aggravating both   his  old , spinal  compression fracture and the partially  un-mended   collar bone he broke  when his bicycle skidded out of control at an icy  railroad crossing last winter.  He was wearing a truss  over his midsection when I picked him up a few days later and  still in pain. "I was going 20 miles an hour. When I got to the doctor,  he actually  yelled at me , 'What, again ?!'   I could have been paralyzed, you know, Bob."
          Karl, however, had something to be cheerful about.
         "I have new freedom. I love Jill, but she was too much. She's had another breakdown and she's staying with her sister now and so I'm free."
I exhorted Karl to use his new freedom to best advantage.
           Karl moved a few miles away to a two-floor, rundown home, only to  discover  that the landlady and her adult son were cocaine addicts. On the Karl's third day there, the family  dog bit  him, and a week later, the police raided the home but did not find enough evidence for an arrest. "I welcomed them into my room but they just took one  look and turned the other way."  We  both laughed  heartedly, especially me as I imagined Karl with his  bipolar effusion  waving the police into a room that defied even them to make a thorough search.  
              Before that week was over, Karl had left  me a voicemail about "something serious " that  had occurred and would I please come over.
              Karl met me at curbside. "She promised me that her son would never get drunk again."  He related  how the landlady's  drunken son had invited him into his room to introduce Karl to his girlfriend, who was sitting on the bed. Karl, hugger that he was, placed a  friendly and innocent arm around the girl. It  ignited violence in her boyfriend , who charged at Karl and began choking him. "I was losing my breath," Karl said, and explained how  he  broke free and, an hour later, oh-so-unwisely returned to the room to apologize to the  girl for his "inappropriate"  behavior.  (Karl was one of many humans who reflexively say "I'm  sorry" at the sight or sound of anything even vaguely disturbing to them.) e had  Hed      H He had gingerly put one foot in the doorway when the girl opened it, then immediately  slammed it with all her might on Karl's face.  Now fearing for his life, Karl called police.  When they and the paramedics arrived to treat his swollen face and bruised neck,  a detective asked Karl if he wanted to press charges, Karl replied,  "No, he needs rehab not jail."   The detective  who knew of  the previous raid on the house, just shook his head in disbelief  at Karl's show of mercy. 
            I insisted that Karl move.
            " Where?" 
            "Any place— but move today !"
             Karl bowed his head with an expression of hopelessness. "I saw a homeless person this morning… "He voice trailed  off and I believe he was fearing it would only be a matter of days   before  tenants at another place  would once more  find his appearance, his behavioral quirks  intolerable and, with their hostile stares, force him out to the street.
               Together we prayed. 
              Again I lost touch with Karl, who hadn't  returned my calls for two weeks. Though I believed  in God's promise that He never burdens us with more than we can handle, I feared that Karl had run out of Christian fortitude.  I asked: Had not the entire multi-fractured world he had endured year after year, putting  hope, faith, and love to an extreme  test each day— had it not fractured beyond human repair?  I can only imagine the spiritual warfare in which Karl was being engaged day and night, standing fast against  a murderous, ever -deceiving  foe  we identify as Satan.   
***
             Karl didn't take my advice to move. But God's grace  apparently did move.   There were no more incidents in Karl's house. Then,  not much later, on July 10,  2011,  Karl and I were having a  pork steak dinner at a county  fair outside Milwaukee.  He had just spent a week as a volunteer  helping  handicapped  adults at a church camp , working side by side with its chaplain.  I had never seen him so naturally energized, eyes sparkling, speech confident. Here was a new man,  full of hope.
            As he told me of his five days of  helping challenged adults with their camp  activities,  of participating in prayer groups and bonding with two camp counselors, I sensed  my friend had been rescued from  dangling an inch from rock bottom.  He now obviously had a love affair with the camp  people he helped. I reflected on the irony of how Karl had, due to a terribly  wounded mind and body, lost his skills  as a salesman but now had gained  far more precious skills: those  of communicating  in  the uncommon,  self-giving  language of love.  
             "You may have found your ministry in life," I told him  with as much enthusiasm as Karl himself was exhibiting  under our food  tent crowded with fair-goers.  
                He smiled  widely at my  remark and began singing  the refrain of a campfire song he had learned at a sing-along with the camp's  100 guest children:  "I'd rather be a sheep..."  People turned, and  Karl nodded at them.
              "Now, when I'm on the pity pot," he said as if sermonizing to the world,  "I think about those challenged people and, wow, I look at their attitude and how much they're enjoying life ! It's brought me closer to Jesus and what His resurrection means for me."
               I sheepishly averted my eyes from all the farm families sitting nearby, but  couldn't resist teasing Karl. " But, are you still a sinner?" 
             "Absolutely."
             "Did you ever consider it amazing that you're still alive ?"
            "Most definitely. I never wanted to plan anything because I didn't think I would live this long.  But now, I'm in a new chapter of life !"
             "Okay, guy," I said.  "What do you want scribbled  on your tombstone?"
             "I want it to say, 'At Least He Tried."
Maybe the Cistercian monk Dom Boylan  proposed a more fitting epitaph with:
"Let us gladly glory in our infirmities, that the power of Christ may dwell in us."
THE END
© 2011  Robert R. Schwarz


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Saturday, August 6, 2011

BAPIN: BLIND AND DEAF

   By Robert R. Schwarz

"For we walk by faith, not by sight"...   The apostle Paul   (2 Corinthians: 5:7) 
            "The best and most beautiful things in the world cannot be seen nor even touched but just felt  in the heart….I am blind, I am deaf—yet I see—yet I hear" ...  Helen Keller
 
"Neither he nor his parents sinned; it is so that the works of God might be made visible through him"...Jesus explaining  the real reason why the man had been blind from birth   (John 9:3)
 
                               
[Note: All words attributed to Bapin in this article were communicated either by the tactile American Sign Language or by a seven-key TeleBraille machine Bapin used during interviews with   Bob Schwarz.]

          The 26-year-old man from India kneeled to pray in his dorm room at the University of Arkansas. He was blind and deaf and, unbelievably, soon to graduate from the University of Arkansas with a B.A. degree. From there he was to become an inventor of sophisticated electronic equipment for other blind and deaf people and then to fall in love with a deaf Korean woman whom he married and bore him a son.
But all he wanted now was a companion. Friendly students were always at his side, ineptly signaling their willingness to escort him here and there or perform some other favor, but no one went the distance of true friendship. So he prayed for a close friend.  
            Anindya "Bapin"  Bhattacharyya  was born deaf in the India farmland village of Telari, 20 miles south of Calcutta . Here, where paved roads and vehicles were absent, 85 per cent of the population was illiterate and lived in poverty. Fortunately, his parents were well educated teachers and knew how to handle his deafness.  "At age two, "Bapin writes," my mother taught me how to speak Bengali, my native language. She used many artistic ways to describe how to make the sound of a letter by moving her lips and had me feel her throat for vibrations."
            When six, Bapin was placed in a public school classroom.  "I faced many difficulties at this school because the pupils took advantage and made a mockery of my deafness. They would guffaw at my misunderstandings while I struggled to lip-read and comprehend what the teachers were saying. The teachers also were not aware of the situation and let it continue. At that time I was too innocent to deal with the situation, therefore, I became intolerant and behaved naughtily. The school got disgusted and expelled me after six months. I headed back home in the village."
            Two tragic events followed which were to prepare Bapin for his arduous journey to adulthood. He was blinded in one eye from an accident while digging soil and was soon to lose his other eye  by a cruel act of a rugby team mate who had become  inflamed with jealously over Bapin's  being appointed  team captain. As the two boys sat around a potato roast one night, the teammate scooped up hot ashes and threw them in Bapin's face. Bapin was confined to his home for four years and gradually became totally blind.
            "My blindness frustrated me because I did not understand how to express my problems, and became angry and mischievous," Bapin recalls. "I often would sneak out of the house to make trouble while everyone was having a siesta. I would sometimes throw hay through my neighbors' windows. Other times I would lock their doors from outside by hooking up chains, which meant no one could come out. Although I was troubled as a child, I found a little peace in creative expression. I developed a hobby by using manual skills to make statues of Indian gods and goddesses through woodworking and ceramics. Since my mother was a talented artist, she always offered to paint these statues for me."
The family for four years searched unsuccessfully in India for a school equipped to educate a bind- deaf-blind student. Then, through the efforts of a persevering father and an aunt, Bapin in 1983 received a scholarship for the Perkins School for the Blind in Watertown, Massachusetts. Airline tickets for father and son to America cost the father one full year's salary. My father accompanied me to be my translator from English to Bengali. All I knew was English alphabet letters and a few words such as 'I love you,' 'I want to go to the bathroom,'  'I want to eat,' and, 'I want to go to sleep.'  The enormous step in taking a journey halfway around the globe was an awakening adventure, "Bapin later wrote in a biography. "My life was completely changed--from a life of darkness to light--when I came to Perkins.   
      "Upon arrival at Perkins and entering my dorm, the first question I was asked, was whether I wanted to live alone or with my father. I told my father that I wanted to live by myself to force myself to learn English. From the next day on, I rolled up my sleeves to learn English, Braille, and sign language at the same time. My father also learned Braille and took courses to acquire new knowledge about how to work with deaf-blind children.
"I started to see a different world by meeting other students who also were deaf-blind, which encouraged me to adjust to my deaf-blindness. I never imagined from a village with a large population living in poverty and illiteracy that there could also be people in similar situations as myself who existed on this earth. The only drawback was that I could not communicate easily with these deaf-blind students because of my limited sign language."
Bapin's father agreed to return to India and leave his son under the guardianship of Bapin's English teacher. During Bapin's  years at Perkins and a subsequent year at Gallaudet University , a  liberal arts university in Washington, D.C., Bapin developed a strong interest in helping blind and deaf people . "My enthusiasm to achieve higher education also continued," he said. A few years later he became the first deaf-blind student at the University of Arkansas, which even before the Americans with Disabilities Act, had been committed to providing equal access and opportunities for students with disabilities. "I persuaded the university to hook up Braille in the computer lab."
But now, a few years later, when he is kneeling in his college dorm and asking God to send him a companion, Bapin's prayer is repeatedly being compromised. He fears that his Hindu parents in India would be profoundly angered when—and if—he told them he had recently converted to Christianity.  He is also perturbed because of his inability to forgive the boy who had blinded him years ago.
Two past scenes rush at him… he is a boy  talking   about God with his Hindu  family…Then in college…  he is seeing those two boys from the church in Little Rock  who stop him  for a moment of fellowship,  and he tells him  them of his dilemma with his parents; they take him to lunch and everybody talks  for  hours; he hears them say,   "God is first before anything else. Don't worry about your parents. God will work in their hearts, too."
Two Sundays later, when the pastor invited anyone who wanted to "accept Jesus Christ as Lord and Savior of their life" to come up to the altar, Bapin walked up.
 "It changed my life overnight," he said. "There was so much peace. I began to pray, to ask God to 'see' and 'hear' for me."
A few months after Bapin made his "altar call", he forgave the soccer teammate who blinded him. This was followed by his parents rejoicing when he told them that Jesus was now his "new Father in heaven."  All that remained was the companion.      
Several weeks before Bapin was to take final exams at the U. of A.,  he learned that his outstanding student work had earned him a scholarship from the National Federation of the Blind, and that  caught the attention of a local Lions Club,  a member of  the world's  foremost supporter  of  Leader ("seeing eye") dogs.  Bapin's new friend would be a yellow Labrador retriever named Chica, a $19,000 gift from the Leader Dog School for the Blind in Rochester, Michigan.  This gift required, however, that both dog and master successfully went through 24 days of arduous training.  Bapin was ecstatic.  But no one, not even the school's expert trainers, expected the kind of setback that would test Bapin's mettle.  
I first met Bapin and Chica in the school's dining room.  I was there on a magazine assignment for "The Lion," the official publication of Lions Clubs International, which had employed me for 14 years as manager of leadership development.  There were seven or eight round tables at which sat 22 blind men and women from all over the United States and several from Spain.  At their feet quietly lay their Leader dogs, heads between paws. Several hours earlier in another room, these people had gone through a gamut of emotions as their dogs were led to their side and, for the first time, they leaned down to pet their new companion.  One blind man went to a piano and began playing as his dog lay at his feet.
Bapin, carrying his Telebraille, and I went to outside to get acquainted. He had jet black hair and a forehead prematurely bald; he stood no more that five-foot-eight and walked briskly and, for someone without sight or hearing, with exceptional confidence. (An interpreter for 125 blind students later commented, "Bapin can read Braille as fast as a secretary can type, whereas 85 percent of blind Americans can't read Braille."  
We were joined by Keith MacGregor who, I was told, was likely the world's only guide dog trainer in the world skilled in tactile signing for the blind-deaf.  Keith communicated with Bapin by grabbing Bapin's outstretched palm as a notepad and then pressing   press hard with a finger to "write" word signs.  At the end of a day of signing,   Keith's shoulder was in pain—a common occurrence for tactile signers—forcing him to call in a substitute interpreter for Bapin. 
            Training for Bapin and Chica begins shortly after 6 a.m. when all dogs are taken to an outdoor run to relieve themselves. The dogs have already received a several weeks of preliminary training and a exhaustive screening process that began soon after they were whelped.  An hour later, a training cadre of 72 men and women attired in khaki shorts maneuver students and dogs out to the 14-acre school complex that had evolved from a 1939 one-farm-house operation.
Bapin and Dinah during training
at the Leader Dog school
The training is done gently yet with the precision of military drill, which then was under the overall direction of the school's director Bill Hansen, a retired Air Force colonel. Students and dogs learn hand signals: "forward," "left," "right," "sit," "down," "stay," and "walk faster." Leader dogs must learn to guide their masters away from oncoming cars, construction zones and other dangerous obstacles.  The dogs are challenged to acquire "a sense of responsibility" for their masters while crossing a traffic intersection or leading them away from objects that overhang their walking route. It is critical and often painfully slow for master and dog to learn what to expect from each other.
 I asked Keith if Chica knew that Bapin is blind?"  He said he believed that Leader dogs know something is different about someone who can't see. "The dogs are used to making eye contact with the person who raised them for several months," he said.  "When we trainers here turn out backs on them, they bark. When we turn around and face them, they stop."   
Except for meals and some R&R time for Chica, Bapin and Ken train until the day concludes with a lecture at 8 p.m. Everyone rests on Sunday. Students may go to church, but without their dogs.
Six days into the training, Bapin begins to worry whether he has passed those final college exams he took only ten days ago. (He will pass them).  A malfunction in his Telebraille adds to the stress. He doesn't know he's about to face a major crisis.
 Keith notices that Chica is refusing to lead!  And Bapin appears as if he's not sure what Chica wants to do. He—mistakenly --expects her to walk in a straight line like a robot and never   to pause to sniff something.  
  Keith speculates --but doesn't tell Bapin—that Chica is either over-reacting to the strangeness of human deafness or that she is still attached to Keith, who was her preparatory trainer for five months before Bapin arrived.  Solving this problem is urgent, for both dog and master are now facing being washed out.  
                 Two days later Keith learns that Chica is Bapin's very first experience with any dog! Bonding with a dog is emotionally alien to the young man from the Indian village.  "I was slow to understand what a relationship to a dog really means," Bapin later explained.  "I had never felt this kind of emotion for an animal. I found myself loving her, yet I didn't keep a balance between this love and her need for discipline."
 But the insight came too late. Chica was washed out and likely would never again be trained to be a Leader dog. "I was hit hard and I missed her," Bapin recalled.
            Nevertheless, Bapin waxed joyous when the school, realizing the uniqueness of this training failure, decided to give Bapin one more opportunity. Chica was replaced with Dinah, a 21-month-old, 64-pound yellow Lab; the school had received her three months ago from an individual who had diligently raised her as part of the school's volunteer puppy program.
Bapin , Keith McGregor, Dinah
            Dinah and Bapin train well together and eventually bond, a process which normally requires ten days but can take 21 days for a deaf-blind student because the dog then never hears any voice command from its master.
         Yet more is required before these two can graduate.  Up to and including the final test, Keith will watch for any sign of dog and master being unable to trust one another. "This trust," Keith says, "can be  a life or death issue when,  for example, both are about to cross a busy  street intersection  but  their instincts  are  demanding different behaviors.  Trust can be difficult enough for a blind person, but for a person who is also deaf, it sometimes seems impossible."  Keith, who has sized up Bapin as "a very independent person,"  hints that he will have to fail both Bapin and Dinah if they can't develop  this mutual trust.
Bapin and Dinah take a walk
 in Rochester, Michigan
            For their final test, Bapin and Dinah are driven to downtown Rochester—a traffic-laden city on this Saturday afternoon—and dropped off at curbside. Keith and I exchange an anxious glance as Bapin and Dinah begin to navigate down the sidewalk. All goes well, even as Dinah skirts his master around an overhanging park tree.
The two now approach a busy intersection. Keith has purposely not told Bapin that this intersection crossing, unlike the right angle crossings at school with which Bapin and Dinah have been trained, must be crossed diagonally.  
            Dinah halts at the curb and sits.  Bapin reflexively pauses for a few seconds then commandingly tugs the halter for Dinah to proceed straight ahead. Dinah refuses; she tugs to the right, towards the diagonal crossing.  Bapin firmly pulls her back. Keith winces at this clash of wills; he has invested much with this pair night and day for more than three weeks. It would be for naught if Bapin got his way with the dog.
For a nervous, brief moment, I recall one afternoon when I observed seeing Bapin and Dinah both taking a nap on the young man’s bed. Had Bapin again allowed affection for his companion to compromise his primary role as master?  
Again Dinah tugs to the right.  Bapin obviously believes Dinah is confused, and that he must do the leading. For a long moment, Keith and I watch as Bapin seems to be frozen in thought.    We do not breathe.  
Then, as the professional Leader dog she had been trained to be, once more Dinah   leads Bapin towards the diagonal crossing. Bapin follows her.  
***
      Nine months later, Bapin was working full-time as an adaptive technology instructor at the Helen Keller National Center for Deaf-Blind Youths & Adults in Sands Point, New York. "He can take a computer apart and put it back together again," a supervisor told me during a follow up conversation I had with Bapin. In his internet-posted biography, Bapin wrote that it was his dream job, " a perfect opportunity for me to move ahead in my life where I can bring myself  at the hands of every deaf-blind worldwide who is hungry for golden opportunities."Bapin now attended parties, took buses here and there to visit friends, and shopped.  Dinah was never further than a tug on the halter. (On one of Bapin's Facebook wall, half of his 146 listed friends posted him a   "happy birthday" greeting.)
I didn't hear from Bapin  until I emailed him eight years later, asking for an update on his life and, of course, Dinah's . "Right now," he replied, "Dinah is resting on her bed in one corner of my office."  The two had just returned on a jet from a conference in Los Angeles. "She loves flying all the time. She even went to Kolkata (Calcutta) with me twice, and all of my family members loved having her there.  Dinah is now ten and a half and loves going to work all the time, so I don’t know when she will be ready to retire." He also mentioned that the dog's spleen had to be removed because of a benign tumor.  
                        On April 4, 2008, in an email sent at 12:40 a.m. to more than 50 friends, Bapin, now working in the San Francisco branch office of the Helen Keller Center, related how Dinah had collapsed a few hours ago due to a cancerous tumor around her heart. "Today, Dinah led me home from my office, which was l2 blocks away….she ate her dinner and soon thereafter collapsed. I am praying and hoping for a few more days Dinah can enjoy living." 
            Dinah spent a few days in an animal hospital, and then was brought home. Another email followed: "I came home during lunchtime to check on her. Dinah still greets me when I get home, and she gets excited with the tail wagging hard, the usual Dinah. I took her outside for her to do her business. She dragged me to walk around an entire block   
            Dinah's veterinarian said the dog could collapse at any time.  Her medical bills so far had personally cost Bapin $3,500. Wanting his companion to live out her last days in a familiar environment, Bapin took Dinah back to New York to stay with his former landlord and co-worker at the Helen Keller Center. To avoid Dinah being left without him too long, Bapin, from May until October, flew monthly from San Francisco to consult with the veterinarian. Buoyed by an prognosis, Bapin emailed me on May 30: "She has not yet shown any decline in the guiding skills as she tries to guide me even on her leash when I am using my cane."
            In October, Bapin posted on his webpage: "It's very sad to let you know that Bapin's
pet daughter, Dinah,  passed away on October 14th. She collapsed at 3:45 p.m. as my co-worker James Feldmann was trying to make her stand up from her bed under his office's desk. She would not stand up and needed to be lifted onto a cart by two other colleagues, John Baroncelli and Robert Pena. She was taken to Robert's car and driven away to the Animal Medical Center in NYC. The doctors found that the fluids in the sac around Dinah's heart filled up again. They had to flush out the fluids but 15 minutes later the fluids filled up fast. There was no other option to curing the tumor and Dinah's primary doctor recommended to have her put down. James and Robert were at the hospital with Dinah and I was in my office here in San Francisco. I was on the phone with the doctor with an interpreter and we talked for a long time. We all decided to let Dinah go at 6:30 p.m. Dinah will be cremated and her ashes will be put into an urn."
***
            Physically adjusting to daily living without a Leader dog was slow,  difficult and especially demanding  for Bapin , for he now navigated solely with a cane; and  demand for  his technical  skills at the  Center increased with  his new role as a trainer for deaf and blind people. Among his several innovations at the Center were Braille-capturing radio instruments that emitted emergency notices on National Public Radio to individuals like himself. 
He continued to travel extensively—with a new kind of companionship: "When you are deaf-blind, technology is an ever-present companion. I travel with a laptop for e-mail, phone and Internet access. I use a G.P.S.-equipped Braille Note note-taker to get information about my surroundings. To communicate with others, I have a Screen Braille Communicator with two sides: one in Braille, which I can read; the other an L.C.D. screen with a keyboard, for someone who is sighted."
 At several of the conferences to which Bapin was invited to test his new adaptive technology products, he had been running into a deaf Korean woman, Sook Hee Choi. "We were developing feelings for each other," Bapin told me over the telephone.  Then came the big news in an email: "I am now engaged to get married. Sook Hee lives in San Francisco and works at the Lighthouse for the Blind there, and she is a wonderful woman! A wedding date has yet to be fixed. Do you remember that I told you at the Leader Dog School for the Blind that I wanted Dinah to help me find a woman? Now, many thanks to her for finding me a girl!"
Sook Hee accepted Bapin's invitation to accompany him to India to celebrate his brother's birthday. That same year, the couple were married in San Francisco city hall.  Eleven months later—on Sook Hee's birthday-- Bapin became a father. They named their son Navin.
***
Bapin, Navin, and Sook Hee
 eating out
            Today, when the 40-year-old  Bapin   leaves  work as supervisor of technology  at the Helen Keller Center branch  office in San Francisco, he boards the train  for a 35-minute ride to El Cerrito , a Bay Area suburb he describes as "middle class."  On the way, he sometimes ponders the prospect of starting up and managing his own adaptive technology company.
After a five-minute walk from the station, he is at the front door of his "very old" two-bedroom apartment. There he is met by his 42-year-old wife and two-year-old toddler Navin, who, according to Bapin,   speaks more than a little of English, Korean, and Bengali, his father's native tongue.  Hook See's mother lives with them.
"It is like any other house, "Bapin will say, "…stove, oven, microwave oven."  There is an alarm system which vibrates his pager when the phone or doorbell rings or if there is an intruder.  Bapin may spend some time before dinner doing woodwork, such as the laundry room cabinets he made. Or, he, Hook See, and Navin might go pick vegetables from their backyard garden.  Or the family may before bedtime entertain their wish to someday take an ocean cruise.  
            On Sundays, Bapin and his Catholic-raised wife may go to an interdenominational church service; churches are at an inconvenient distance from their home.  
The author interviewing Bapin
during the Leader Dog training
I asked Bapin about domestic challenges or disappointments. "I can't see my son running around, so my wife and mother-in-law have to keep an eye on him." I also asked if Navin senses that his father is blind and deaf. "I don't believe he understands I'm blind, but he knows to clasp my hand for me to get him something. He knows he needs to guide me.  He has good social skills."   And a replacement for Dinah?  "Perhaps" is all he says.
During one of our interviews, Bapin remarked,  "No one of us should give up on anything, but  rather have strong faith in God and ourselves. I have a motto I'd like to share: Persistence, Ambition, and EnthusiasmYou will be surprised at how much progress you will make no matter what the difficulties or weaknesses are."  Whatever guides Bapin through his visual darkness and silent world was stated loudly and with enlightened vision in an early email to me: "I am a blind- deaf person and I want to make full use of my skills and give of myself." At the bottom of his message was a quote from the founder of Opus Dei, Saint Josemaria Escrivá: Don't let your life be sterile. Be useful.

THE END
©2011 Robert R. Schwarz

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